> Offhand comment led reporter to write about vaccine-autism link > By KRISTI L. NELSON, KNOXVILLE NEWS SENTINEL October 24, 2005 > > The man virtually canonized by parents of autistic children and > vilified by "angry pediatricians" said he had no agenda beyond > documenting questions that need to be answered. > > In fact, before doing the research that led to the book "Evidence > of Harm: Mercury in Vaccines and the Autism Epidemic: A Medical > Controversy," published in April by St. Martin's press, freelance > writer and sometime New York Times contributor David Kirby "knew > nothing" about autism, he said. > > Kirby, who lives in Brooklyn, doesn't have an autistic family > member or loved one. In 15 years as a reporter, he'd never done a > single story on autism. > > "I knew nothing about it," he said. "I didn't even know it was an > issue." > > Then, late in 2002, scoping out a possible feature for a women's > magazine, Kirby visited some parents in Southern California who > were using alternative medicine to treat their autistic children. > One of the mothers "offhandedly" mentioned many parents believe > mercury in vaccines was tied to their children's autism. > > "I thought to myself, 'You're crazy,'" Kirby said. "'There's no > mercury in vaccines.'" > > Or even if there were, he reasoned, the Centers for Disease Control > and Prevention would be monitoring it: "'They would never let it > get to dangerous levels.'" > > In fact, many vaccines were made with the preservative thimerosal, > which is almost 50 percent mercury. However, repeated > epidemiological studies failed to prove a connection between > thimerosal and autism. While the CDC, FDA, American Academy of > Pediatrics and others remain firm that there is no evidence that > the "trace amounts" of mercury in vaccines cause any harm, a > growing number of parents, advocates and researchers have become > increasingly convinced thimerosal is linked to what they call an > "epidemic" of autism. In 1999, the CDC called for pharmaceutical > companies to "phase out" the use of thimerosal in routine childhood > immunizations, but it's still present in flu shots and some other > medications. > > It's estimated as many as one in 166 children today is diagnosed > with an autism spectrum disorder. That's up from one in 250 five > years ago, one in 500 in the 1990s - and one in 10,000 in the > 1980s. Up for debate is how much of that increase is attributable > to better public awareness and more definitive autism diagnoses. > > But when a rider that would effectively dismiss all current and > future civil-court thimerosal lawsuits was anonymously attached to > the Homeland Security Act of 2002 just before it went to vote, > Kirby began to see a political controversy he wanted to put to paper. > > He pitched a story on the vaccine-autism controversy to several > magazines but was turned down. So Kirby pitched his idea to a book- > publisher agent, who helped him write a proposal. By last October, > Kirby was writing his first book. > > Kirby heavily researched the book, intending to write it from a > political perspective. Instead, on the advice of his agent, he > rewrote it with a large focus on parents looking for answers. > > But, Kirby said, he worked to balance the book, siding with neither > the public health officials and pharmaceutical industry who state > there is no link between vaccines and autism, nor with those who > advance theories of a mercury-autism cover-up. > > "Each side accuses the other of being irrational, overzealous, > blind to evidence they find inconvenient, and subject to > professional, financial or emotional conflicts of interest that > cloud their judgment," he writes in the book's introduction. "In > some ways, both sides are right." > > In the book, Kirby outlines scientific evidence that supports and > that discredits a theoretical vaccine-autism link. But he also > sought to tell a compelling story of a group of parents on a > mission - without inserting his own bias. > > "This isn't my opinion; this isn't my essay," Kirby said. > "Everything's documented." > > Still, upon the book's release, it garnered mostly positive > response from parents and some media, with negative response coming > largely from some in the scientific and medical communities. But > the book has sold well, and Kirby has also sold its movie rights > and is writing an update for the paperback edition, due out in > March 2006. > > Kirby recognizes parents of autistic children will make up the bulk > of his audience when he speaks in Knoxville Nov. 5, during the > Autism Society of America East Tennessee chapter's annual fall > conference. That bothers him only because he believes the issue > should be on all Americans' radar. > > "This story affects everybody, whether you have an autistic child > or not," he said. "This is a growing problem that affects our > children and it's incumbent on us to find out what's going on." > > Kirby will speak from 9:05-10:15 a.m. at the conference, giving an > overview of scientific evidence "for and against" a vaccine-autism > connection. He'll also give an update of current federal research. > > "Until we can completely prove or disprove causation, this argument > is going to continue," Kirby said, "and it would be extremely > helpful to settle it - one way or another." > > Kristi L. Nelson may be reached at 865-342-6434. She is health > writer for the News Sentinel.